We’re On a Mission

Miller is a beautiful 11.5-month old girl who was born with a spontaneously occurring, ultra-rare ZMYND8 gene mutation. Miller’s mutation has caused her to have a neurodevelopmental disorder responsible for hypotonia, severe developmental delays, and drug-resistant infantile spasms (seizures).

Miller’s Miracle aims to develop and implement a personalized gene therapy for Miller while accelerating innovation for personalized gene therapies for neurodevelopmental disorders caused by ultra-rare genetic mutations, particularly those associated with refractory epilepsy.

Our mission is to advance the development of life-changing treatments through scientific innovation, support affected families, and foster a collaborative community that empowers every child living with these challenging conditions to reach their fullest potential.

Miller’s Miracle is a registered non-profit organization with pending 501(c)(3) status.